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Subject: Governance

Important aspects of Society

  • Have India’s health centres really ‘collapsed’?

    health centres

    In the news

    • Public health centres in India have long been shrouded in infamy, perceived as symbols of systemic failure.
    • The effectiveness of primary healthcare in India has always been a topic of discussion, with calls for strengthening these services through government commitment to accessibility, affordability, and quality care.

    PYQ from CSE Mains 2021:

     

    Q. “Besides being a moral imperative of a Welfare State, primary health structure is a necessary precondition for sustainable development.” Analyse.

    Health Centres in India

    • Primary Health Centres (PHCs) also known as Public HCs play a crucial role in providing comprehensive healthcare services to the population.
    • The first PHC in India was established following the proposal of the PHC concept in a paper submitted to the Executive Board of the World Health Organization (WHO) in January 1975.
    • The establishment of PHCs gained further momentum with the International Conference on PHC held in Alma Ata, Kazakhstan in 1978.
    • They are a fundamental component of the healthcare system, with Medical Officers at these centers required to hold an MBBS degree.
    • India boasts a vast public health infrastructure with 23,391 PHCs and 145,894 sub-centers, serving a substantial percentage of the population.
    • PHCs cover a significant portion of outpatient care, including services for non-communicable diseases, maternal health, and child health.

    Importance of Health Centres

    • Foundational Role: Health centres form the backbone of India’s public health system, providing primary care to millions.
    • Access and Affordability: With nearly two lakh centres across the country, they aim to offer accessible and affordable healthcare, particularly in rural areas.
    • Impact on Equity: Effective health centres can mitigate social and health inequities, reducing reliance on costly private healthcare and preventing households from falling into poverty due to healthcare expenses.

    Unveiling the Reality

    • Evidence of Progress: Surveys conducted across five states reveal a pattern of improving quality and utilization of health services over time, albeit at a slow pace.
      1. In Himachal Pradesh, functional health centres serve 83% of the population.
      2. Chhattisgarh has shown a radical expansion in the public provision of healthcare, with increased facilities, medicines, and staff presence.
      3. Bihar lags behind, with dismal quality of health centres and some sub-centres being dormant or non-existent.
    • Policy Interventions: Increased health expenditure, initiatives like the National Rural Health Mission, and state-specific schemes have contributed to incremental improvements.
      1. The share of health expenditure in the Union Budget increased drastically.
      2. The National Health Mission’s share shrank from 69% to 44%, while allocations for the Ayushmann Bharat program and new AIIMS hospitals surged.
      3. COVID-19 led to a sustained increase in patient utilization of public health facilities, indicating growing trust in the system.

    Challenges and Gaps

    • Underutilization: Despite improvements, health centres still face challenges such as high staff absenteeism, limited services, and poor infrastructure.
    • Lacunas: Health workers report irregular flow of funds, lack of facilities like toilets and transport, and inadequate supply of drugs and testing equipment.
    • Social Discrimination: Caste and gender dynamics influence access to and quality of healthcare, perpetuating inequalities. Upper-caste doctors display disparaging attitudes towards marginalized communities, while upper-caste families disrespect Dalit ANMs.
    • Gender Disparities: Women, particularly frontline health workers, play a crucial role in rural health settings but often face neglect and discrimination.

    Way forward

    • Holistic Investment: While progress has been made, it remains patchy, with allocations often prioritizing tertiary healthcare over primary care.
    • Designated allocations: The composition of the healthcare budget has remained stagnant, with minimal increases in the share allocated to primary healthcare.
    • Policy Reform: The paper advocates for substantial support from the central government to enable poorer states to replicate successful initiatives and enhance the role of health centres in public healthcare delivery.

    Conclusion

    • India’s health centres, though fraught with challenges, embody resilience and potential.
    • By addressing systemic gaps and prioritizing primary healthcare, the nation can harness the transformative power of these centres to achieve equitable and accessible healthcare for all.

  • Holistic Progress Card (HPC): Revolutionizing Student Assessment

    Holistic Progress Card

    In the news

    • The traditional report cards of students are undergoing a transformation with the introduction of the Holistic Progress Card (HPC) by the National Council for Educational and Research Training (NCERT).
    • This innovative approach aims to evaluate not just academic performance but also various aspects of a child’s holistic development.

    What is the Holistic Progress Card (HPC)?

    • 360-Degree Evaluation: Departing from the conventional marks or grades-based assessment, the HPC adopts a comprehensive evaluation approach.
    • Student-Centric Assessment: Students are actively engaged in the assessment process through class activities, allowing them to demonstrate diverse skills and competencies.
    • Peer and Self-Assessment: Students participate in evaluating their own and their classmates’ performance, fostering self-awareness and peer collaboration.

    Key Features of the HPC

    • Classes Involved: The HPC was created for the foundational stage (Classes 1 and 2), preparatory stage (Classes 3 to 5), and middle stage (Classes 6 to 8). Efforts are currently underway to develop a similar framework for the secondary stage.
    • Parameters of Evaluation: Besides academics, students are evaluated on self-awareness, relationships, problem-solving, emotional intelligence, and creativity. Students reflect on their progress after each activity by circling statements like “I learned something new,” “I expressed creativity,” or “I helped others.”
    • Method of Evaluation:
      1. Self-Assessment: Included in the HPC for all students from Class 1 to Class 8. In middle school (Classes 6 to 8), students set academic and personal goals with specific timelines at the start of the year. The middle stage HPC also involves an “ambition card” where students list their goals for the year and areas for improvement, along with the skills and habits needed to achieve them.
      2. Parental Involvement: Parents provide feedback on homework completion, classroom engagement, and the child’s ability to balance screen time with extracurricular activities at home, thus connecting home and school.
      3. Peer Evaluation: Students evaluate their classmates’ participation in learning and engagement after each classroom activity.

    Implementation and Adoption

    • Rollout across States: The HPC has been sent to all states and Union Territories, with several already adopting it for Classes 1 to 8.
    • Regional Customization: States have the flexibility to modify the HPC to suit their regional requirements while adhering to the overarching principles.

    Rationale behind the Change

    • Focus on Higher-Order Skills: The shift from rote memorization to higher-order skills evaluation aligns with the objectives of NEP 2020 and NCF SE.
    • Promotion of Holistic Development: The HPC aims to communicate students’ strengths and areas of improvement, fostering self-esteem and self-awareness.

    Benefits and Implications

    • Comprehensive Evaluation: The HPC promotes a holistic assessment approach, encompassing academic achievements and critical skill development.
    • Shift to Formative Assessment: By emphasizing formative assessment, the HPC encourages competency-based evaluation and continuous improvement.
    • Insights for Teachers and Parents: Teachers and parents gain valuable insights into each student’s learning journey, enabling personalized support and guidance.

    Conclusion

    • The introduction of the Holistic Progress Card marks a significant step towards redefining student assessment in India.
    • By prioritizing holistic development and competency-based evaluation, the HPC aims to nurture well-rounded individuals capable of thriving in a rapidly evolving world.

  • A vaccine that prevents six cancers

    Pyq mains

    UPSC IAS/2017

    Stem cell therapy is gaining popularity in India to treat a wide variety of medical conditions including leukaemia, Thalassemia, damaged cornea and several burns. Describe briefly what stem cell therapy is and what advantages it has over other treatments? (10)
    Pyq pre 

     

    Cervical Cancer: Symptoms, Diagnosis & Treatment

    Why is it in the News?

    • Cervical cancer prevention, particularly through HPV vaccination, has gained attention recently due to several factors. January was observed as Cervical Cancer Awareness Month, drawing focus to the importance of combating this disease. Additionally, March 4 marked International HPV Awareness Day, further highlighting the significance of addressing HPV-related health issues.

    What is Cervical Cancer?

    • Cervical cancer is a type of cancer that affects the cervix, the lower part of the uterus. It is primarily caused by certain types of the Human Papillomavirus (HPV), which is transmitted through intimate contact.
    • If left untreated, cervical cancer can be life-threatening. It is a significant health concern worldwide, with a particularly high burden in lower- and middle-income countries. In India, cervical cancer is the second most common cancer among women, posing a substantial threat to public health.

    What is Human Papillomavirus (HPV)?

    • Human Papillomavirus (HPV) is a group of viruses that infect the skin and mucous membranes. It’s the most common sexually transmitted infection (STI) worldwide. HPV can cause various health issues, including genital warts and certain types of cancers.

    What Facts are explained in the article?

    • Prevalence and Impact: Cervical cancer claims the lives of over 300,000 women annually worldwide, with a disproportionate burden in lower-income countries.
    • Risk in India: With over 500 million women at risk, cervical cancer is a significant public health concern in India, second only to breast cancer.
    • Role of HPV Vaccination: HPV vaccination is identified as a crucial strategy for preventing cervical cancer. It targets the underlying cause of the disease by protecting against HPV infection.

    Strategies for Prevention of Cervical cancer

    • HPV Vaccination: Implementing widespread HPV vaccination programs, particularly targeting adolescent girls, can significantly reduce the incidence of cervical cancer. Vaccination should ideally occur before the onset of sexual activity to maximize effectiveness.
    • Screening for Precancerous Lesions: Regular screening for precancerous lesions, such as Pap smears or HPV DNA tests, can detect abnormalities early and allow for timely intervention. This is crucial for reducing the incidence of advanced-stage cervical cancer.
    • Education and Awareness: Increasing education and awareness about cervical cancer, HPV infection, and the importance of vaccination and screening are essential. This includes targeting healthcare professionals, policymakers, parents, and adolescents to dispel myths and misconceptions and encourage uptake of preventive measures.

    What are the Challenges?

    • Limited Access: HPV vaccination may not be widely accessible, particularly in lower-resourced communities, and is often available at a significant out-of-pocket cost.
    • Misconceptions Among Physicians: Some physicians underestimate the incidence and risk of cervical cancer, as well as the safety and effectiveness of HPV vaccines. This can lead to hesitancy in recommending vaccination to eligible individuals.
    • Parental Hesitancy: Misinformation and concerns about vaccine safety and efficacy among parents can contribute to hesitancy in vaccinating adolescents against HPV.
    Pap Smears
    Description: A screening procedure for cervical cancer involving collecting cells from the cervix to examine for abnormalities.
    Purpose: To detect precancerous or cancerous changes in cervical cells early for timely intervention and prevention.
    Procedure: Use of a speculum to visualize the cervix and collection of cells with a brush or spatula.
    Timing: Typically performed during routine gynecological exams, starting at age 21 or within 3 years of becoming sexually active.

    Facts about HPV Vaccination:

    • The HPV vaccine is safe and effective in preventing six HPV-related cancers, including cervical, vulvar, anal, vaginal, throat, and cervical cancers.
    • Vaccination is recommended for adolescents starting at age 9 years to maximize its effectiveness.
    • HPV vaccination is an essential component of the immunization schedule recommended by the Indian Academy of Pediatrics (IAP).

    Best Practices for HPV Vaccination and Cervical Cancer Prevention:

    • Effective Communication:
    • Provide clear and accurate information to parents about HPV vaccination.
    • Address concerns and misconceptions to ensure informed decision-making.
    • Timely Vaccination:
    • Recommend HPV vaccination for adolescents starting at age 9.
    • Encourage vaccination before sexual activity begins for maximum effectiveness.
    • Integration into Immunization Programs:
    • Advocate for inclusion in national immunization programs for widespread access.
    • Collaborate with policymakers to ensure equitable vaccine coverage.
    • Promotion of Regular Screening:
    • Emphasize the importance of cervical cancer screening for women over 30.
    • Encourage routine Pap smears or HPV DNA tests for early detection.
    • Physician Education:
    • Provide comprehensive training on HPV vaccination and cervical cancer prevention.
    • Equip healthcare professionals with updated guidelines and communication skills.

    In conclusion, the article emphasizes the importance of proactive measures to prevent cervical cancer, particularly through HPV vaccination and screening. It underscores the role of healthcare professionals, policymakers, and community stakeholders in addressing the challenges and ensuring equitable access to preventive interventions.

  • A women’s urban employment guarantee act

    An urban employment scheme that is responsive to women's needs - The Quantum Hub

    Why is it in news?

    • Reducing gender gaps and increasing women’s empowerment are part of the Sustainable Development Goals. Notwithstanding ethical and constitutional imperatives, there is also evidence suggesting that increasing women’s employment rates can be an engine for economic growth.

    What is the issue?

    • Despite functioning at a fraction of its intended capacity, the Mahatma Gandhi National Rural Employment Guarantee Act (MGNREGA) has been pivotal in providing financial autonomy to women in rural areas.
    • More than half the MGNREGA workforce are women. However, urban realities are different. Social norms, lack of safety, and hostile transportation options are some of the factors inhibiting urban women to enter the workforce.

    What data is explaining?

    • The Periodic Labour Force Survey (PLFS) pegs women’s employment rate in urban areas at 22.9% in the last quarter of 2023. There are clear signs of high unmet demand for employment among urban women.
    • First, the unemployment rate in urban areas, which is a measure of how many would like employment (irrespective of whether they are actively seeking it or not), is 9% compared to 4% in rural areas.
    • Second, there are two types of unemployment individuals who would like to work and are actively seeking a job versus those who would like to work but may not be actively seeking a job.
    • A much larger share of unemployed women in urban areas are seeking employment compared to rural areas. Further, nearly 25% of urban women have completed higher secondary education compared to 5% in rural areas. The low urban employment rates among women also points to wastage of much potential.
    • The article presents statistics from the Periodic Labour Force Survey (PLFS) indicating that approximately 10.18 crore women in urban areas aged 15-59 are out of the workforce. When including those who are self-employed or engaged in casual labor, this number rises to around 11.65 crore.

    Introducing the Women’s Urban Employment Guarantee Act (WUEGA)

    The proposal outlines a comprehensive plan to address urban unemployment through the implementation of a Women’s Urban Employment Guarantee Act (WUEGA). This act aims to provide employment opportunities specifically targeted towards women in urban areas.

    • Programme Management and Decentralization: The proposal suggests that women should form at least 50% (ideally 100%) of the programme management staff under WUEGA. This approach not only ensures women’s active participation but also strengthens the constitutional mandate of decentralization by involving local communities in decision-making processes.
    • Ensuring Accessibility and Supportive Infrastructure: The proposal emphasizes the importance of providing essential worksite facilities, including childcare facilities, to enable women’s participation in the program. It also advocates for the availability of work within a 5-km radius and proposes free public transportation for women to facilitate their commute to worksites.
    • Diversifying Employment Opportunities: The proposal highlights the need to diversify urban works to cater to local needs and wider consultation. It mentions existing examples such as plantation and harvesting reeds on floating wetlands and suggests supplementing the list based on local requirements.
    • Incentives and Welfare Measures: This section discusses the creation of incentives, such as automatic inclusion in welfare boards, to encourage women’s participation in the program. It proposes utilizing welfare boards to provide maternity entitlements, pensions, and emergency funds for program participants.
    • Skill Development and Apprenticeships: The proposal emphasizes the importance of addressing skill gaps among women to facilitate their transition from school to work. It suggests implementing apprenticeship programs for college students from various disciplines, providing them with opportunities to join as program functionaries and improve their job readiness.
    • Information Facilitation Centers and Capacity Building: Here, the proposal suggests establishing Information Facilitation Centers at each urban local body, run by women who have completed Class 10, to provide computer training facilities and bridge the gap in skills. It also advocates for regular capacity-building initiatives to empower these centers and enhance women’s job readiness.
    • Social Audit and Monitoring Mechanisms: The proposal recommends the establishment of a social audit unit within WUEGA, comprising at least 50% women staff, for independent monitoring of the program. It suggests that social audits could serve as opportunities for women who have completed Class 12 to join part-time or full-time roles and enhance their job readiness through acquiring various skill sets.

    Successful Women-Led Initiatives in Waste Management

    • The article highlights successful women-led initiatives, such as the end-to-end waste management program in Karnataka’s gram panchayats. It emphasizes that women not only manage waste collection but also drive ‘Swacch’ vehicles, leading to the acquisition of driving licenses and contributing to the success of the initiative.

    Wayforward

    • The article discusses the financial implications of the proposed program, estimating that the wage component funded by the Union government would cost around 1.5% of the GDP. When adding material and administrative costs, the total cost is expected to be around 2% of the GDP. It advocates for a phased rollout of the scheme with periodic assessments to smoothen costs.
    • Here, the article suggests that the proposed women’s employment program could serve as a foundation for a broader urban employment program encompassing both genders. It argues that the benefits of such a program outweigh fiscal concerns and calls for a shift towards ensuring income assurance, especially for women.

     

  • The Hindu Op-ed: E-evidence, new criminal law, its implementation

    The Hindu Op-ed: E-evidence, new criminal law, its implementation

    PYQ Relevance:

    1. Impact of digital technology as a reliable source of input for rational decision-making is a debatable issue. Critically evaluate with suitable examples. (2021)

    2. Examine the scope of Fundamental Rights in light of the latest judgment of the Supreme Court on the Right to Privacy. (2017)
    From The Hindu

    Note4Students:

    Mains: Important Legislations and Amendments.

    Prelims: Bharatiya Nyay Sanhita; Bharatiya Nagarik Suraksha Sanhita; Bharatiya Sakshya Adhiniyam;

    Mentor comments: The Ministry of Home Affairs (MHA) and State governments are preparing for a smooth transition of Bharatiya Nagarik Suraksha Sanhita (BNSS) which was passed in December 2023 and will be in effect from 1st July 2024. While some changes have been made in the BNSS in connection with investigation and police functioning, the scope of secondary evidence has been slightly broadened and some changes have been made in the provisions relating to electronic evidence in the Bharatiya Sakshya Adhiniyam

    Let’s Learn.

    Why in the News?

    Some changes have been made in the provisions relating to electronic evidence in the Bharatiya Sakshya Adhiniyam 2023, which is to replace the Indian Evidence Act.

    Context of the News:

    • The three newly enacted criminal laws, the Bharatiya Nyay Sanhita (to replace the IPC), the Bharatiya Nagarik Suraksha Sanhita (to replace the CrPC), and the Bharatiya Sakshya Adhiniyam (to replace the Indian Evidence Act) are to come into force on July 1, 2024.
      • Significantly, Section 106(2) of the BNS, which prescribes 10 years imprisonment for fatal accidents if they are not immediately reported to the police, has been put on hold, as notified by the Central government.
      • Some changes have been made in the Bharatiya Nagarik Suraksha Sanhita (BNSS) in connection with the investigation and police functioning.

    The scope of secondary evidence has been slightly broadened and some changes have been made in the provisions relating to electronic evidence in the Bharatiya Sakshya Adhiniyam.

    Key Highlights of the Bhartiya Nyay Sanhita (BNS) Act, 2023:

    1. The Bharatiya Nyay Sanhita retains most offenses from the IPC (1860). It adds community service as a form of punishment.

    2. Sedition is no longer an offense.  Instead, there is a new offense for acts endangering the sovereignty, unity, and integrity of India.
      
    3. The BNS adds terrorism as an offense.  It is defined as an act that intends to threaten the unity, integrity, security or economic security of the country, or strike terror in the people.

    4. Organized crime has been added as an offense.  It includes crimes such as kidnapping, extortion, and cyber-crime committed on behalf of a crime syndicate.  Petty organized crime is also an offense now.

    5. The BNS retains the provisions of the IPC on rape and sexual harassment.  It does not consider recommendations of the Justice Verma Committee (2013) such as making the offense of rape gender-neutral and including marital rape as an offense.

    The BNS omits Section 377 of IPC which was read down by the Supreme Court.  This removes rape of men and bestiality as offenses.

    6. Murder by a group of five or more persons on grounds of certain identity markers such as caste, language, or personal belief will be an offense with a penalty of life imprisonment or death, and with a fine.

    7. Most importantly, it criminalizes ‘deceitful’ promises to marry.

    The Clarity specified on New Provisions related to Electronic Records is as follows:

    • On Electronic Records: Definition of “document” includes electronic records on emails, server logs, documents on computers, laptops or smartphones, messages, websites, locational evidence, and voice mail messages stored on digital devices, etc.
    • On Primary Electronic Evidence: Video recordings stored in electronic form are primary evidence. This may help the investigating agencies in fixing the culpability of a cyber-criminal.
      • Section 63: ‘Semiconductor memory‘ and ‘communication device’ don’t change the impact of the provision. However, the IT Act, 2000 has a definition of “electronic form” in a broad view.

    Present Dilemma on Data Integrity:

    • Admissibility of Electronic Records: The law regarding the use of electronic records is clear, with specific requirements for their admissibility. A recent Supreme Court judgment emphasized the necessity of a certificate under Section 65-B (4) for electronic records to be admissible.
      • This certificate, now under Section 63(4) of the BSA, must be signed by two individuals: the person in charge of the device and an expert. While timely submission of this certificate is preferred, its absence can be rectified without harming the accuser’s rights.
    • Ensuring Data Integrity: The certificate includes a hash value obtained through a specific algorithm to ensure data integrity. The use of secure hash algorithms like SHA256 is recommended to safeguard data integrity, as opposed to potentially vulnerable algorithms like MD5 and SHA1.

    Challenges associated with preparedness to adopt New Format:

    • Preparedness with Cyber Environment: Expert certification for electronic records admission will increase cyber laboratories’ workload as most crimes involve smartphones, with call records and location data aiding investigations.
    • Lack of Human Resource: Requiring expert-signed certificates for every record may strain cyberlabs lacking manpower. For example, some cyberlabs (such as in Chhattisgarh) are not even notified under the IT Act to give expert opinion on electronic records.
    • Need Optimal Opinion: Expert opinion should be sought only when record integrity is disputed during trial.

    Way Forward:

    • Need for an Awareness Drive: A general awareness campaign on encryption methods is needed, especially for private agencies using electronic devices for security.
    • Infrastructure Readiness: Enforcement agencies must prepare infrastructure before July to handle increased responsibilities effectively.

    References:

    https://www.thehindu.com/opinion/lead/e-evidence-new-criminal-law-its-implementation/article67900858.ece#:~:text=The%20three%20newly%2Denacted%20criminal,force%20on%20July%201%2C%202024.

    https://prsindia.org/billtrack/the-bharatiya-nyaya-second-sanhita-2023

    References: https://www.thehindu.com/opinion/op-ed/the-economic-case-for-investing-in-indias-children/article67896821.ece

  • Rare Diseases Care in India: Progress, Challenges, and Opportunities

    In the news

    What are Rare Diseases?

    • Global Perspective: Rare diseases are defined by the World Health Organization (WHO) as often debilitating lifelong diseases or disorders with a prevalence of 1 or less, per 1,000 population.
    • National Context: While India lacks a standardized definition, the Organisation of Rare Diseases – India suggests defining a disease as rare if it affects 1 in 5,000 people or less.

    Rare Diseases: Key Facts and Figures

    • India issued its first National Policy on Rare Diseases in March 2021, offering comprehensive strategies for prevention and management.
    • Less than 5% of rare diseases have therapies available in India, yet they affect nearly 1/5th of the population.
    • The Union Government allocated ₹50 lakh per patient for rare diseases treatment, but only approximately 49% of the allocated funds have been utilized.
    • There are approximately 7,000-8,000 rare diseases in India, with new diseases continually being identified and reported.

     

    National Policy on Rare Diseases, 2021: Highlights

    • Comprehensive Approach: This Policy offers a holistic framework encompassing prevention, management, and treatment strategies tailored to the unique needs of patients.
    • Financial Support: Recognizing the financial burden on patients, the policy aims to lower the exorbitant costs of treatment through targeted interventions and support mechanisms.
    • Research Focus: Emphasizing indigenous research, the policy lays the foundation for bolstering research initiatives in the field of rare diseases, fostering innovation and discovery.

    Other Initiatives in India

    • National Hospital-Based Registry: A pivotal component of the policy, the establishment of a national registry of rare diseases promises to provide invaluable epidemiological data, informing targeted interventions and resource allocation.
    • Early Screening and Prevention: The creation of Nidan Kendras aims to enhance early detection and prevention efforts, crucial for improving patient outcomes and reducing disease burden.
    • Capacity Building: Strengthening secondary and tertiary health facilities at Centres of Excellence underscores the commitment to enhancing healthcare infrastructure and service delivery.

    Challenges and Imperatives

    • Defining Rare Diseases: Despite significant progress, India lacks a standardized definition of rare diseases, necessitating clarity to guide policy and resource allocation effectively.
    • Funding Utilization: Concerns arise over the underutilization of allocated funds, highlighting the urgency to streamline resource allocation and enhance accountability mechanisms.
    • Patient Advocacy: Rare diseases patient advocacy groups play a pivotal role in advocating for timely access to treatment and sustainable funding support, urging policymakers and healthcare providers to prioritize patient-centric initiatives.

    Way Forward

    • Sustainable Funding: Ensuring sustainable funding support for rare diseases treatment is paramount to safeguarding patient well-being and fostering equitable access to care.
    • National Registry Implementation: Accelerating the establishment of a hospital-based national registry is imperative to harness the power of data-driven decision-making and advance rare diseases research.
    • Multidisciplinary Care: The creation of comprehensive care centers, coupled with initiatives to support caregivers, represents a crucial step towards enhancing patient outcomes and fostering a supportive healthcare ecosystem.

    Conclusion

    • As India commemorates World Rare Diseases Day, it stands at a pivotal juncture in its journey towards rare diseases care and advocacy.
    • By embracing a collaborative and patient-centric approach, India can surmount existing challenges, paving the way for a future where every individual affected by a rare disease receives the care and support they deserve.

    Try this PYQ from CSP 2014:

    Consider the following diseases

    1. Diphtheria
    2. Chickenpox
    3. Smallpox

    Which of the above diseases has/have been eradicated in India?

    (a) 1 and 2 only

    (b) 3 only

    (c) 1, 2 and 3

    (d) None

     

    [wpdiscuz-feedback id=”p3avfkfd93″ question=”Please leave a feedback on this” opened=”1″]Post your responses here.[/wpdiscuz-feedback]

  • Understanding the world of the informal waste picker

     

    High time to address occupational hazards of waste pickers

    Why is it in news?  

    • On March 1, International Waste Pickers Day, waste pickers across the world will pay homage to fellow pickers who were murdered in Colombia in 1992.

    Who are informal waste pickers?

    • The International Labour Organization defines the informal sector in waste management as ‘individuals or small and micro-enterprises that intervene in waste management without being registered and without being formally charged with providing waste management services’

    Background:

    • Informal waste pickers, often overlooked and marginalized, play a crucial but unseen role in India’s waste management systems. They are vital yet often forgotten members of the waste value chain ecosystem, deserving recognition and understanding.
    • These workers are the primary collectors of recyclable waste, playing a critical role in waste management and resource efficiency by collecting, sorting, trading and sometimes even reinserting discarded waste back into the economy.
    • Yet, they face systemic marginalisation due to non-recognition, non-representation, and exclusion from social security schemes and legal protection frameworks.

    What data shows?

    • While reliable estimates of informal waste pickers are difficult to come by, the Centre for Science and Environment reported that the informal waste economy employs about 5%–2% of the urban population globally.
    • Many are women, children and the elderly, who are often disabled, are the poorest of the urban poor, and face violence and sexual harassment often. The Periodic Labour Force Survey 2017-18 indicates that there are nearly 1.5 million waste pickers within India’s urban workforce, with half a million being women.

    Challenges Faced by Waste Pickers

    • Work Conditions: Waste pickers labor for 8 to 10 hours daily, collecting 60 kg to 90 kg of waste, often without safety equipment, exposing themselves to hazards.
    • Health Issues: They suffer from dermatological and respiratory problems, alongside regular injuries, due to their hazardous work conditions.
    • Socioeconomic Factors: Low income, irregular work, and harassment exacerbate their precarious livelihoods, compounded by their subordinate position in the caste hierarchy.

    Impact of Private Sector Participation in waste collection

    • Exclusion: Private sector involvement in waste management alienates waste pickers, depriving them of their rights and exacerbating their vulnerability.
    • Marginalization: As noted by the Alliance of Indian Waste Pickers (AIW) 2023 report, Private actors employ expensive machinery, marginalizing informal waste pickers by offering competitive rates to waste generators, forcing them into hazardous scavenging activities.
    • Loss of Rights: Private players and municipal authorities often cordon off dump sites, further limiting waste pickers’ access and exacerbating their vulnerability.

    Importance of Waste Pickers in Plastic Management

    • Global Contribution: Waste pickers globally collect and recover up to 60% of all plastic waste, contributing significantly to its recycling efforts, as highlighted in the 2022 World Economic Forum report.
    • Underappreciated Role: Despite their crucial contribution to sustainable recycling, waste pickers’ work is undervalued, and they struggle to earn a decent livelihood.
    • Quantitative Impact: Reports by the United Nations Development Programme (UNDP) and Pew state that informal waste pickers collected 27 million metric tonnes of plastic waste in 2016 alone, representing 59% of all plastic material collected for recycling, thereby preventing it from ending up in landfills or oceans.
    • Relevance in India’s Context: In India, where per capita plastic waste generation is rising, waste pickers’ role becomes even more critical, especially considering that the country is among the top 12 responsible for 52% of the world’s mismanaged waste, as per a recent CPCB report.
    • Harnessing Traditional Knowledge: Waste pickers possess traditional knowledge about waste handling, which could significantly enhance the effectiveness of the EPR system if integrated properly.
    • Rethinking EPR Norms: In light of this, there is a need to reconsider the formulation of EPR norms to ensure the inclusion and empowerment of millions of informal waste pickers within the new legal framework.

    Understanding Extended Producer Responsibility (EPR)

    • Objective: EPR aims to enhance plastic waste management by transferring the responsibility of waste management from municipal authorities to commercial waste producers.
    • Promises of EPR: EPR holds the potential for social inclusion for waste pickers and other informal grassroots actors by promoting accountability among commercial waste producers.

    Analysis of Extended Producer Responsibility (EPR) Guidelines

    • Stakeholder Identification: The EPR guidelines in India recognize various stakeholders, including the Central Pollution Control Board (CPCB), producers, brand owners, industry, industry associations, civil society organizations, and citizens.
    • Uncertainty Regarding Inclusion: It remains unclear whether these stakeholders include informal waste pickers or their representing organizations, raising questions about the extent of their involvement in the EPR framework.
    • Discrepancies with Solid Waste Management Rules 2016: While the Solid Waste Management Rules 2016 mandate the inclusion of waste pickers in municipal solid waste management systems, informal waste pickers are evidently missing in the prioritization within the EPR guidelines.
    • Omission in EPR Guidelines 2022: The EPR Guidelines 2022, published by the Ministry of Environment, Forest, and Climate Change, have blatantly ignored the role of informal waste pickers in waste management and recycling, further exacerbating their exclusion from the formal waste management framework.

    Challenges in Implementation

    • Redirection of Waste: Despite its promises, EPR often redirects waste away from the informal sector, posing a threat of large-scale displacement for informal waste pickers.
    • Concerns Raised by WIEGO: Women in Informal Employment: Globalizing and Organizing (WIEGO) have noted the potential negative impacts of EPR on informal waste pickers, highlighting the need for careful consideration and mitigation of such effects.

    In conclusion, acknowledging waste pickers’ crucial role in plastic recycling is imperative for sustainable waste management. Efforts should focus on integrating them into formal systems like the Extended Producer Responsibility mechanism while addressing their socio-economic vulnerabilities for a more equitable and environmentally sound future.

     

  • Ex-SC Judge Justice A M Khanwilkar appointed Lokpal Chairperson

    In the news

    • Former Supreme Court judge Justice Ajay Manikrao Khanwilkar has been appointed as the chairperson of Lokpal, the anti-corruption ombudsman of India.
    • Justice Khanwilkar retired from the Supreme Court in July 2022, bringing a wealth of judicial experience to his new role.

    About Lokpal

    • Establishment: Lokpal is a statutory body established under the Lokpal and Lokayuktas Act of 2013.
    • Mandate: It is tasked with investigating allegations of corruption against certain public functionaries and related matters.
    • Organisational Structure:
    1. The Lokpal comprises a chairperson and a maximum of 8 members.
    2. The chairperson must be a former Chief Justice of India, a former Supreme Court judge, or an eminent person meeting eligibility criteria.
    3. Half of the members must be judicial members, either former Supreme Court judges or former Chief Justices of High Courts.
    4. At least 50% members must be from SC / ST / OBC / Minorities and women.
    5. Members serve a term of 5 years or until they turn 70, whichever is earlier.
    • Perks and Benefits: The salary, allowances, and other conditions of service for the chairperson are equivalent to those of the CJI, while members receive benefits similar to Supreme Court judges.

    Appointment Process:

    • The President of India appoints the chairperson and members based on the recommendation of a selection committee.
    • The selection committee includes the PM as Chairperson, the Speaker of Lok Sabha, the Leader of Opposition in Lok Sabha, the Chief Justice of India or a nominated judge, and one eminent jurist.

    Jurisdiction:

    • Lokpal has jurisdiction to investigate allegations of corruption against Prime Ministers, Union Ministers, Members of Parliament, and officials of the Union Government.
    • It extends to individuals associated with government-funded entities and those receiving substantial foreign contributions.

    Exceptions for Prime Minister:

    • Lokpal cannot probe allegations against the PM related to certain sensitive areas like international relations, security, public order, atomic energy, and space without the approval of at least 2/3rds of its members.
    • A full Lokpal bench must consider initiating inquiries into complaints against the PM.

    Powers of Lokpal:

    • Lokpal exercises superintendence over and provides directions to the Central Bureau of Investigation (CBI) in corruption cases.
    • It can authorize the CBI for search and seizure operations linked to such cases.
    • The Lokpal’s Inquiry Wing possesses powers akin to a civil court.
    • It can recommend the transfer or suspension of public servants implicated in corruption allegations.
    • Lokpal is empowered to prevent the destruction of records during preliminary inquiries and confiscate assets obtained through corruption.

    Reporting and Accountability

    • Annually, Lokpal submits a report on its activities to the President, which is then presented to both Houses of Parliament for scrutiny.

    Try this PYQ from CS Mains 2013

    Q.‘A national Lokpal, however strong it may be, cannot resolve the problems of immorality in public affairs’. Discuss.

  • Stop the dithering and encourage green elections in India

    Mains Pyq: ‘Simultaneous election to the Lok Sabha and the State Assemblies will limit the amount of time and money spent in electioneering but it will reduce the government’s accountability to the people’ Discuss.

    Prelims Pyq: 

    Consider the following statements :​
    1. In India, there is no law restricting the candidates from contesting in one Lok Sabha election from three constituencies.​

    2. In 1991 Lok Sabha Election, Shri Devi Lal contested from three Lok Sabha constituencies.​

    3. As per the existing rules, if a candidate contests in one Lok Sabha election from many constituencies, his/her party should bear the cost of bye-elections to the constituencies vacated by him/her in the event of him/her winning in all the constituencies.​

    Which of the statements given above is/are correct?​

    a.1 only
    b.2 only​
    c.1 and 3
    d. 2 and 3

     

    Some states have embraced online voting. It's a huge risk. - POLITICO

    Why is it in news?

    • Amidst the climate crisis, shifting to sustainable practices across every sphere of human activity has become inevitable and urgent. In August 2023, ahead of the Assembly elections in five States, the Election Commission of India (ECI) voiced its concern over the environmental risks associated with the use of non-biodegradable materials in elections.

    What is the Concept of Green Elections?

    • Green elections involve adopting eco-friendly practices throughout the electoral process, including campaign materials, rallies, and polling booths.
    • Transitioning to sustainable alternatives can mitigate the environmental impact and promote citizens’ health.

    Why there is need of Green Elections?

    • Given that the conduct of every election results in an avoidable carbon footprint, there is a need for eco-friendly elections, which would be a boost to environmental stewardship alongside civic participation.
    • Sri Lanka and Estonia, for instance, have conducted environmentally-conscious elections. As India, the world’s most populous democracy, gears up for the next general election, environmental considerations must be prioritised, paving the way for ‘green elections’.

    Environmental Impact of Elections:

    • In the 2016 US presidential elections, emissions from campaign flights of just one candidate equaled the annual carbon footprint of 500 Americans.
    • Traditional election methods involve energy-intensive activities like rallies, use of loudspeakers, PVC flex banners, hoardings, and disposable items, contributing to environmental degradation.
    • India’s massive elections involving crores of voters and large political rallies exacerbate the environmental impact.
    • Paper-based materials and energy-intensive campaign practices further escalate the environmental footprint.

    Challenges in India for green elections:

    • Technological Challenges: Implementing electronic and digital voting systems requires robust infrastructure, especially in rural areas, to ensure reliable access to technology. Measures to prevent hacking and fraud must be put in place to maintain the integrity of the electoral process.
    • Access and Training: Ensuring fair access to new voting technologies for all voters, including marginalized communities, poses a significant challenge. Training election officials and voters alike on the use of new technologies is essential to facilitate smooth adoption.
    • Financial Constraints: Governments may face substantial upfront costs for acquiring eco-friendly materials and implementing new technology, which could deter financially constrained administrations from pursuing such initiatives.
    • Cultural and Behavioural Hurdles: Overcoming cultural inertia and the perception of physical presence at polling booths as sacrosanct poses a behavioural challenge. Public scepticism towards new approaches and concerns about compromises to vote security must be addressed to gain widespread acceptance.
    • Transparency and Auditing: Ensuring transparency in the adoption of new technologies and implementing effective auditing mechanisms are crucial to building trust in environmentally-friendly election practices.
    Research Findings for mains answer value addition:
    • Research by Willemson and Krips from Estonia (2023) identified transportation of voters and logistics to and from polling booths as the primary source of carbon emissions during elections.
    • The running of polling booths constitutes the secondary source of emissions.
    • Transitioning to digital voting systems could potentially reduce the carbon footprint by up to 40%.

     

    Successful examples of green elections

    Kerala:

    • Campaigning Restrictions: During the 2019 general election, the Kerala State Election Commission urged political parties to avoid single-use plastic materials.
    • Ban on Non-Biodegradable Materials: The Kerala High Court imposed a ban on flex and non-biodegradable materials in electioneering, promoting the use of alternatives like wall graffiti and paper posters.
    • Collaboration for Green Elections: Government bodies collaborated with the district administration in Thiruvananthapuram to ensure eco-friendly elections, including conducting training sessions for election workers in villages.

    Goa:

    • Eco-Friendly Election Booths: In 2022, the Goa State Biodiversity Board introduced eco-friendly election booths for the Assembly elections, utilizing biodegradable materials crafted by local traditional artisans.

    Sri Lanka:

    • Carbon-Sensitive Campaign: The Sri Lanka Podujana Peramuna (SLPP) party launched the world’s first carbon-sensitive environmentally friendly election campaign in 2019.
    • Carbon Emission Measurement: SLPP measured carbon emissions from vehicles and electricity used during political campaigns and compensated for them by planting trees in each district through public participation.

    Estonia:

    • Digital Voting Initiative: Estonia pioneered digital voting as an online alternative, promoting voter participation while reducing the environmental footprint of traditional paper-based elections.
    • Robust Security Measures: The success of Estonia’s digital voting system demonstrates that accompanying robust security measures can ensure both eco- and electorate-friendly elections.

    Suggested blueprint and Way-forward for Green elections

    • Involving All Stakeholders: The green transition must involve all stakeholders, including political parties, Election Commissions, governments, voters, the media, and civil society.
    • Integration of Directives: Success lies in integrating top-level directives with grassroots initiatives to foster a green transition effectively.
    • Leadership Role: Political parties should take the lead in enacting legislation mandating eco-friendly electoral practices.
    • Legislative Initiatives: This involves campaigning through digital platforms or door-to-door campaigning, reducing energy-intensive public rallies, and encouraging the use of public transportation for election work.
    • Supporting Local Alternatives: Incentivizing the replacement of plastic and paper-based materials with sustainable local alternatives for polling booths, such as natural fabrics, recycled paper, and compostable plastics, aids waste management and supports local artisans.
    • Advocacy for Digital Voting: The ECI can push for digital voting, despite the need for training and capacity building of officials.
    • Ensuring Equal Participation: To ensure equal participation of all voters in the digital electoral process, the government must educate and support voters and ensure equitable access to digital technology.
    • Catalyst Role: Civil society should act as a catalyst in promoting eco-conscious electoral practices.
    • Media’s Crucial Role: The media can emphasize the environmental impact of conventional election methods and shed light on innovative eco-friendly alternatives.
    • Setting an Example: Embracing eco-conscious electoral practices can help India set an example for other democracies around the world.

  • Criminals of Politics: Analysis of Rajya Sabha Candidates by ADR

    In the news

    • The Association for Democratic Reforms (ADR) and the National Election Watch has found that 36% of the newly elected Rajya Sabha candidates have declared criminal cases against themselves.

    Context:

    • Increase in Serious Crimes: 17% of total candidates face serious criminal charges, including with cases related to attempted murder, underscoring the gravity of the situation.
    • Biased Representation: Approximately 21% of the candidates are billionaires, with assets exceeding Rs 100 crore, reflecting the significant wealth amassed by certain individuals in the political arena.
    • Prevailing disparities: The majority (76%) of candidates belong to the 51-70 age group, with only 19% being women, reflecting gender disparities in political representation.

    Why does Criminality persist in Indian politics?

    • Political Patronage: Criminals seek political backing to sustain their illicit activities, while politicians rely on criminals for funding, muscle power, and electoral support.
    • Protracted Legal Processes: Lengthy court proceedings, averaging around 15 years, coupled with declining conviction rates, allow criminals to evade justice and continue their political careers.
    • Legal Ambiguity: Pending cases become a shield for tainted candidates, who exploit the “law will take its own course” narrative to deflect scrutiny.
    • Electoral Advantage: Candidates with criminal records may have higher chances of winning elections, incentivizing parties to field them despite ethical concerns.
    • Limited Scrutiny: Despite legal mandates for candidates to disclose criminal cases, voters often lack the awareness or resources to scrutinize this information effectively.
    • Vote Bank Dynamics: Parties exploit caste, religious, or regional loyalties, prioritizing short-term gains over candidate integrity.

    Impacts of Criminality in Indian politics:

    • Corrosive Effects: The fusion of crime and politics has corrosive effects on the governance. The nexus between crime and politics can exacerbate corruption and weaken governance structures. When politicians with criminal backgrounds hold office, there is a higher likelihood of corruption, misuse of power, and a lack of transparency in decision-making processes, all of which can have detrimental effects on the economy.
    • Undermining Democracy: Allowing criminals in politics undermines the development of a healthy democracy that India’s freedom fighters fought for. The impact extends to the provision of public goods. Research findings suggest that the effects are concentrated in less developed and more corrupt Indian states, indicating that the presence of criminal politicians hinders the effective delivery of public goods and services to constituents.
    • Economic Growth: While criminal candidates may win elections in the short term, their presence can hinder the long-term development of a robust democracy. The election of criminally accused politicians leads to lower economic growth in their constituencies. Studies show a 22% point lower yearly growth in the intensity of night-time lights, which serves as a proxy for economic activity, following the election of such politicians.

    Measures Taken to Address Criminalization in Politics

    [A] Legislative Interventions

    • Representation of the People Act, 1951: Sections 8(1), 8(2), and 8(3) establish grounds for disqualification of individuals convicted of certain offenses, barring them from contesting elections.
    • Conduct of Election Rules, 1961: Mandates candidates to file affidavits disclosing pending criminal cases and convictions, enhancing transparency in electoral processes.
    • Chapter IX A of Indian Penal Code: Defines and penalizes electoral offenses such as bribery and undue influence, deterring criminal activities in elections.

    [B] Establishment of Special Courts

    • Judicial Mechanisms: Special courts dedicated to expediting criminal cases against legislators and parliamentarians help ensure timely justice and accountability.
    • Tackling Impunity: Targeted prosecution of political figures accused of criminal activities reduces impunity and strengthens the rule of law.

    [C] Vohra Committee Report (1993)

    • Comprehensive Analysis: The Vohra Committee investigated the political-criminal nexus, highlighting its extent and proposing strategies to combat this menace.
    • Policy Recommendations: Recommendations from the report informed policy decisions aimed at disrupting criminal networks operating within political structures.

    [D] Election Commission Initiatives

    • Affidavit Reforms: Election Commission directives mandate candidates to declare criminal records, financial assets, and educational qualifications, empowering voters with crucial information.
    • Moral Code of Conduct: Effective enforcement of ethical standards during elections minimizes the influence of criminal elements and promotes fair electoral practices.

    Major Judicial Interventions

    Background Key Outcome Significance
    Union of India vs. Association for Democratic Reforms (2002) Challenged lack of transparency in electoral processes regarding candidates’ records. Supreme Court mandated Election Commission to compel candidates to disclose criminal, financial, and educational details. Empowered voters with vital information for informed choices, fostering accountability in elections.
    Ramesh Dalal vs. Union of India (2005) Imposed disqualification criteria for convicted candidates. Supreme Court ruled sitting MPs/MLAs would be disqualified if convicted and sentenced to imprisonment for two years or more. Established stringent disqualification criteria to deter candidates with criminal backgrounds, enhancing integrity of elected representatives.
    Lily Thomas vs. Union of India (2013) Addressed interpretation of Section 8(4) of the Representation of the People Act, 1951. Supreme Court declared Section 8(4) unconstitutional, disqualifying legislators convicted and sentenced to two years or more. Closed loopholes allowing convicted legislators to retain seats, reinforcing accountability and integrity in the political system.
    People’s Union for Civil Liberties vs. Union of India (2013) Addressed voters’ rights to reject candidates with criminal backgrounds through NOTA. Supreme Court ruled voters could reject all candidates using NOTA in electronic voting machines (EVMs). Introduced NOTA as a voting option, empowering voters to express dissatisfaction with criminalized politics, and promoting cleaner elections.

    Way Forward

    • Decriminalization Legislation: Enact laws to prevent individuals facing serious criminal charges from contesting elections, ensuring that those with criminal backgrounds are barred from political office.
    • State Funding of Elections: Introduce state funding of elections to reduce the influence of money and muscle power, thereby minimizing the role of criminals in financing political campaigns.
    • Enhanced Voter Awareness: Educate voters about the detrimental effects of criminalization in politics and provide easily accessible information about candidates’ backgrounds to enable informed decision-making.
    • Empowering Election Commission: Grant Election Commission broader regulatory powers to enforce inner-party democracy, regulate party finances, and curb the influence of criminals in political parties.
    • Continued Judicial Oversight: Uphold the judiciary’s role in safeguarding electoral integrity by delivering landmark judgments that reinforce accountability, transparency, and ethical conduct among elected representatives.
    • Strict Enforcement of Disqualification Criteria: Ensure strict implementation of disqualification criteria for convicted politicians, irrespective of their appeals or legal maneuvers.

    Try this question from CS Mains 2017:

    Q. Young people with ethical conduct are not willing to come forward to join active politics. Suggest steps to motivate them to come forward. (150 Words, 10)

     

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