Mother and Child Health – Immunization Program, BPBB, PMJSY, PMMSY, etc.

India’s first ICMR-SCD Stigma Scale 

Why in the News?

The Indian Council of Medical Research (ICMR) has developed the ICMR-SCD Stigma Scale for India (ISSSI) to help understand and reduce stigma faced by patients and caregivers from sickle cell disease (SCD).

What is Sickle Cell Disease (SCD)?

  • Nature of Disease: SCD is a genetic disorder where red blood cells become sickle-shaped, reducing oxygen delivery in the body.
  • Complications: These sickle cells can block blood vessels, break easily, and cause anemia, organ damage, and painful episodes.
  • Cause: The disease is inherited, requiring one defective gene from each parent; one gene leads to sickle cell trait.
  • Symptoms: Common symptoms include fatigue, body pain, swollen limbs, frequent infections, and organ damage.
  • Treatment Options: There is no universal cure, but bone marrow transplants and gene therapy offer potential solutions; supportive care helps manage symptoms.

Note:

  • Anaemia is a condition where the blood lacks enough healthy red blood cells (RBCs) or haemoglobin.
  • All SCD patients have anaemia, but not all anaemia is due to Sickle Cell Disease.

About the ICMR-SCD Stigma Scale for India (ISSSI):

  • Purpose: The ISSSI is India’s first tool designed to measure stigma faced by sickle cell disease (SCD) patients and their caregivers.
  • Developing Authority: It was developed by ICMR to understand and address the social impact of SCD in India’s diverse communities.
  • Global Context: This is the fourth stigma scale worldwide and the first validated for Indian conditions.
  • Scientific Validation: The tool was validated in a study published in The Lancet (Regional Health – South-East Asia).
  • Availability: The ISSSI is now approved for use in both clinical and research settings across India.
  • Components: It includes two formats — ISSSI-Pt for patients and ISSSI-Cg for caregivers.
  • Stigma Dimensions: It captures issues related to family expectations, reproductive concerns, social disclosure, illness burden, interpersonal challenges, and negative healthcare experiences.
  • Data Sources: The scale was developed using inputs from 6 culturally diverse districts: Alluri Seetharama Raju, Anuppur, Chhoteudepur, Kandhamal, Mysuru, and Udalguri.

India’s Strategy: Anaemia Mukt Bharat (AMB)

  • Launch Year: The AMB Mission was launched in 2018 to reduce anemia using a 6x6x6 strategy.
  • Target Groups: It covers six groups — young children, school children, adolescents, women of reproductive age, pregnant women, and lactating mothers.
  • Key Interventions: Actions include iron and folic acid supplements, deworming, nutrition education, digital health tools, IFA-fortified foods, and disease screening (including SCD).
  • Supporting Systems: It is backed by inter-ministerial coordination, state-level units, research centers, the AMB Dashboard, digital tracking, and supply chain support.
  • Reach: The mission aims to impact around 450 million people, focusing on real-time monitoring and last-mile delivery.
[UPSC 2023] Consider the following statements in the context of interventions being undertaken under Anaemia Mukt Bharat Strategy:

1. It provides prophylactic calcium supplementation for pre-school children, adolescents and pregnant women. 2. It runs a campaign for delayed cord clamping at the time of child-birth. 3. It provides for periodic deworming to children and adolescents. 4. It addresses non-nutritinoal causes of anaemia in endemic pockets with special focus on malaria, hemoglobinopathies and fluorosis.

How many of the statements given above are correct?

Options: (a) Only one (b) Only two (c) Only three* (d) All four

 

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