Why in the News?
The Indian Council of Medical Research (ICMR) has developed the ICMR-SCD Stigma Scale for India (ISSSI) to help understand and reduce stigma faced by patients and caregivers from sickle cell disease (SCD).
What is Sickle Cell Disease (SCD)?
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About the ICMR-SCD Stigma Scale for India (ISSSI):
- Purpose: The ISSSI is India’s first tool designed to measure stigma faced by sickle cell disease (SCD) patients and their caregivers.
- Developing Authority: It was developed by ICMR to understand and address the social impact of SCD in India’s diverse communities.
- Global Context: This is the fourth stigma scale worldwide and the first validated for Indian conditions.
- Scientific Validation: The tool was validated in a study published in The Lancet (Regional Health – South-East Asia).
- Availability: The ISSSI is now approved for use in both clinical and research settings across India.
- Components: It includes two formats — ISSSI-Pt for patients and ISSSI-Cg for caregivers.
- Stigma Dimensions: It captures issues related to family expectations, reproductive concerns, social disclosure, illness burden, interpersonal challenges, and negative healthcare experiences.
- Data Sources: The scale was developed using inputs from 6 culturally diverse districts: Alluri Seetharama Raju, Anuppur, Chhoteudepur, Kandhamal, Mysuru, and Udalguri.
India’s Strategy: Anaemia Mukt Bharat (AMB)
- Launch Year: The AMB Mission was launched in 2018 to reduce anemia using a 6x6x6 strategy.
- Target Groups: It covers six groups — young children, school children, adolescents, women of reproductive age, pregnant women, and lactating mothers.
- Key Interventions: Actions include iron and folic acid supplements, deworming, nutrition education, digital health tools, IFA-fortified foods, and disease screening (including SCD).
- Supporting Systems: It is backed by inter-ministerial coordination, state-level units, research centers, the AMB Dashboard, digital tracking, and supply chain support.
- Reach: The mission aims to impact around 450 million people, focusing on real-time monitoring and last-mile delivery.
[UPSC 2023] Consider the following statements in the context of interventions being undertaken under Anaemia Mukt Bharat Strategy:
1. It provides prophylactic calcium supplementation for pre-school children, adolescents and pregnant women. 2. It runs a campaign for delayed cord clamping at the time of child-birth. 3. It provides for periodic deworming to children and adolescents. 4. It addresses non-nutritinoal causes of anaemia in endemic pockets with special focus on malaria, hemoglobinopathies and fluorosis. How many of the statements given above are correct? Options: (a) Only one (b) Only two (c) Only three* (d) All four |
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