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GS Paper: GS2-13.Issues relating to development and management of Social Sector/Services relating to Health, Education, Human Resources.

  • Global Report on Medical Data Leak

     

    Medical details of over 120 million Indian patients have been leaked and made freely available on the Internet, according to a recent report.

     Global Report on Medical Data Leak

    • It is published by Greenbone Sustainable Resilience, a German cybersecurity firm.
    • The first report was published in October 2019 in which Greenbone revealed a widespread data leak of a massive number of records, including images of CT scans, X-rays, MRIs and even pictures of the patients.
    • The follow-up report, which was published, classifies countries in the “good”, “bad” and “ugly” categories based on the action taken by their governments after the first report was made public.
    • India ranks second in the “ugly” category, after the U.S.

    Highlights of the report

    • As per the follow-up report, Maharashtra ranks the highest in terms of the number of data troves available online, with 3,08,451 troves offering access to 6,97,89,685 images.
    • The next is Karnataka, with 1,82,865 data troves giving access to 1,37,31,001 images.
    • The number of data troves containing this sensitive data went up by a significant number in the Indian context a month after the initial report was published.
    • It is a notable fact for the systems located in India, that almost 100% of the studies (data troves) allow full access to related images stated the report.

    What led to the leaks?

    • Greenbone’s original report says the leak was facilitated by the fact that the Picture Archiving and Communications Systems (PACS) servers, where these details are stored.
    • These servers are not secure and linked to the public Internet without any protection, making them easily accessible to malicious elements.

    Impact of leaks

    • The leak is worrying because the affected patients can include anyone from the common working man to politicians and celebrities.
    • In image-driven fields like politics or entertainment, knowledge about certain ailments faced by people from these fields could deal a huge blow to their image.
    • The other concern is of fake identities being created using the details, which can be misused in any possible number of ways.
  • [op-ed snap] Our expectations could mutate in response to the coronavirus

    Context

    In some ways, China is setting the standard for a public health response that may become a way of life in the 21st century.

    Origin of the outbreak and deadly it could turn out?

    • Outbreak of unknown virus: In December 2019, an outbreak of viral pneumonia of unknown etiology emerged in Wuhan, a city in the central Chinese province of Hubei.
    • Discovery of novel coronavirus:  A few weeks later, the World Health Organization (WHO) and Chinese health authorities announced the discovery of a novel coronavirus, known now as 2019-nCoV, as being responsible for the pneumonia.
    • Important questions: The two most important questions asked in a fast-evolving pandemic of this nature are:
      • 1) How deadly is the disease, and;
      • 2) Can it be contained?
      • The latest available figures suggest that the death toll in China is 304 and 14,411 have been infected. The current fatality rate estimate of 2% is unstable and is likely to fall as more cases are detected.

    Containment attempts by China and spread to the other countries

    • Unprecedented attempt by China: The attempt at containment started late, but has never been attempted in the fashion that China has gone about it.
      • Wuhan lockdown: Belatedly, on 23 January, China locked down Wuhan and 12 other cities, quarantining 52 million people in one sweeping action.
      • This is the first known case in modern history of any country locking down an entire large city.
    • Reports of confirmed cases from other countries: Confirmed cases have since been reported from Hong Kong, Macau, Taiwan, Thailand, South Korea, Japan, Singapore, Australia and the US.
      • India reported its first case from Kerala of a medical student from Wuhan University, followed by two more.
      • Singapore and the US have now banned foreign nationals who have recently been in China from entering the country.
      • Russia, Canada, the UK and India have begun evacuating citizens from Hubei province.

    Research on coronavirus so far

    • Coronaviruses (CoVs) are characterized by club-like spikes that project from their surface, an unusually large RNA genome and a unique replication strategy.
      • CoVs cause a variety of diseases in mammals and birds, ranging from enteritis in hoofed animals to potentially lethal human respiratory infections.
      • Genome sequence: The 2019-nCov genome was sequenced in China in early January and reported in The Lancet last week.
      • It suggests that the original host of this coronavirus was a bat reservoir, though it is unclear whether there was an intermediate host.
    • A recent entry to the human host: The uniformity of the sequenced genome suggests that the virus has entered human hosts very recently.
    • Recent emergence from the animal reservoir: Several other countries, including the US and France, have sequenced the RNA of the 2019-nCoV as well. These sequences and their similarity to the initial samples from China suggest a single, recent emergence from an animal reservoir.

    Tests and vaccine development

    • How is the virus tested? Testing for 2019-nCoV requires a reverse transcription polymerase chain reaction test (RT-PCR) which converts RNA into DNA, making study and comparison easier.
    • No vaccine yet: There are no vaccines yet for this virus, but promising paths have been identified, borrowed from the SARS related vaccines.
      • Development of an effective vaccine may only come after the 2019-nCoV is contained, but it may still be useful if there were to be a subsequent outbreak.
      • The frequency of future outbreaks is only likely to increase because of climate change, global travel and fast mutating viruses.

    What lessons can India learn?

    • Develop framework and capacity: For India, this global health emergency should serve as an eye-opener.
      • If lockdown turns out to be a useful tool to prevent the spread of a deadly virus, India will need to develop the framework and capacity to implement such a drastic measure.
      • Under-equipped municipalities: Our municipalities are hopelessly under-equipped to implement strict isolation and containment strategies.
      • We will need to develop the capacity to build large facilities for housing patients in isolation wards.
      • Use of pre-cast: This will require India to accelerate the use of construction methods like pre-cast technology.
    • Protocol and instructions: The National Centre for Disease Control (NCDC) has been proactive in updating its protocol related to the 2019-nCov and has clear instructions for reporting and assay preparation.
    • Develop capacity in geographically diverse regions: Samples in India need to be sent to the National Institute of Virology in Pune.
      • While the public health and epidemic escalation framework appears capable of handling a small number of cases well, it is not clear how it will stand up to a large number of cases in a specific geographic region.

    Conclusion

    “Nothing happens quite by chance. It is a question of accretion of information and experience,” said Jonas Salk, the virologist who developed the polio vaccine, in some ways, China is setting the standard for a public health response that may become a necessary way of life in the 21st century. India must use this as a guidepost to greater preparedness.

  • Public Health Emergency of International Concern (PHEIC)

     

    The World Health Organization (WHO) has declared the novel Coronavirus infection a Public Health Emergency of International Concern (PHEIC). In the past decade, WHO has declared public health emergencies for outbreaks including swine flu, polio and Ebola.

    What is PHEIC?

    Definition: Under the International Health Regulations (IHR), a public health emergency is defined as “an extraordinary event which is determined, as provided in these Regulations: to constitute a public health risk to other States through the international spread of disease; and to potentially require a coordinated international response”.

    What criteria does the WHO follow to declare PHEIC?

    • PHEIC is declared in the event of some “serious public health events” that may endanger international public health.
    • The responsibility of declaring an event as an emergency lies with the Director-General of the WHO and requires the convening of a committee of members.

    Implications of a PHEIC being declared

    • There are some implications of declaring a PHEIC for the host country, which in the case of the coronavirus is China.
    • Declaring a PHEIC may lead to restrictions on travel and trade.
    • However, several countries have already issued advisories to their citizens to avoid travelling to China, while others are airlifting their citizens from it.
  • [op-ed of the day] Time to prioritise education and health

    Context

    The policy currently being pursued is intended primarily to incentivise potential investors while social objectives and help in indigenisation are being jettisoned.

    Call for more liberalisation and its possible impacts

    • What reforms are asked for?
      • Reforms such as labour market liberalisation and removal of constraints on the acquisition of land for industrial purposes are demanded.
    • What could be their possible impacts?
      • The negative impact such reform measures are likely to have on the incomes, living conditions and the economic security of the workers and the agricultural class.
      • Counterproductive labour policy: The policy of freedom of hiring and firing of labour will be counterproductive as it would squeeze demand further in a situation of huge demand deficit.

    Social sector and demand

    • Neglect of human infrastructure: While talks of economic revival focus on infrastructure there is little talk of investment in human infrastructure, particularly in education and 
      • Conditional expenditure: On the contrary, the expenditure in social sectors is made conditional upon a higher rate of growth
      • The flawed premise of long term impact: Most mainstream economists believe that public expenditure in social sectors can only have a long- term impact on growth. Which is not entirely correct.
    • The benefit of investment in human infrastructure:
      • Increases demand in short-run: Investment in social sectors results in creating demand in the short run by way of opening avenues for large-scale employment.
      • Competitiveness and sustainability: It imparts competitiveness and sustainability to the Indian economy in the medium and long run.
    • Example of RTE, teacher employment and demand creation
      • The recruitment of 5.7 million additional teachers over a period of, say, five years, can create huge scale demand.
      • And, this is only one factor essential for universalising quality school education.
      • There is also a large gap between the requirement of infrastructure in the schools and that available and built recently.
      • The gap between requirement and availability: According to government data, only 12.5% of the schools covered by the RTE Act were compliant with RTE norms.
      • Meeting these norms has the potential of creating employment on a large scale.
    • Importance of health and education
      • Education has a crucial role to play for an individual in gaining employment and retaining employability.

    Conclusion

    The gestation period of projects in social sectors is not as long as it is made out to be. It is, therefore, time for reprioritising education and health in the scheme of development strategy and the allocation of budgetary resources.

     

  • [pib] The Medical Termination of Pregnancy (Amendment) Bill, 2020

    The Union Cabinet has approved the Medical Termination of Pregnancy (Amendment) Bill, 2020 to amend the Medical Termination of Pregnancy Act, 1971.

    About the Bill

    • The Medical Termination of Pregnancy (Amendment) Bill, 2020 is for expanding access of women to safe and legal abortion services on therapeutic, eugenic, humanitarian or social grounds.
    • It aims to increase upper gestation limit for termination of pregnancy under certain conditions and to strengthen access to comprehensive abortion care, under strict conditions, without compromising service and quality of safe abortion.

    Salient features of proposed amendments:

    • Proposing requirement for opinion of one provider for termination of pregnancy, up to 20 weeks of gestation and introducing the requirement of opinion of two providers for termination of pregnancy of 20-24 weeks of gestation.
    • Enhancing the upper gestation limit from 20 to 24 weeks for special categories of women which will be defined in the amendments to the MTP Rules and would include ‘vulnerable women including survivors of rape, victims of incest and other vulnerable women (like differently-abled women, Minors) etc.
    • Upper gestation limit not to apply in cases of substantial foetal abnormalities diagnosed by Medical Board. The composition, functions and other details of Medical Board to be prescribed subsequently in Rules under the Act.
    • Anonymity of the person: Name and other particulars of a woman whose pregnancy has been terminated shall not be revealed except to a person authorised in any law for the time being in force.

    Benefits

    • It is a step towards safety and well-being of the women and many women will be benefitted by this.
    • Recently several petitions were received by the Courts seeking permission for aborting pregnancies at a gestational age beyond the present permissible limit on grounds of foetal abnormalities or pregnancies due to sexual violence faced by women.
    • The proposed increase in gestational age will ensure dignity, autonomy, confidentiality and justice for women who need to terminate pregnancy.
  • [op-ed of the day] Equity’s weak pulse and commodified medicine

    Context

    As the government tries to overhaul the public health system in India, its time to take into account the advent and the role played by the private sector and its implications.

    The advent of the private sector

    • Increase in the role of the private sector in the post-Independence era: Post-Independence, the private sector increased its footprint in India.
      • Perpetual sub-optimal investments in public health allowed the private sector to capitalise, flourish, and increasingly gain the confidence of the masses.
      • The private sector went from having about 1,400 enterprises in 1950 to more than 10 lakh in 2010-11.
      • To doctors, this promised greater professional liberty, lesser restrictions, and higher incomes.
      • After liberalisation, the greater focus shifted to the lucrative tertiary-care sector and led to an onslaught of sophisticated private health care in cities.

    The dominance of the private sector and malpractices

    • The scale of dominance: Private sector has over 70% of the health-care workforce and 80% of allopathic doctors, has meant that it is scarcely possible for a health-care provider to function in defiance of its norms.
      • Pervasive malpractices: The pervasiveness of malpractices in this market has come to ensure that few could survive without condoning them.
      • Nexus of the private players: Players in this market, in much of their malpractices, have also learnt to function as a harmonious family.
      • Organised form to safeguard interest: The family plays its role in safeguarding its members, acquainting them with its norms and interests, and leveraging the power of its patriarchs to defend its interests in society.
      • Standards of success dictated by the markets: It is little wonder that the market has also come to dictate the avenues of aggrandisement and yardsticks of professional success for health-care professionals.
      • Benchmark of quality changed: Business finesse and social adroitness rather than clinical excellence and empathy become the touchstones of calibre in this market.

    Failure of the government

    • Absence of national system: The larger chunk of Indian health care (and health workforce) could not be brought under a “national system” having some form of overarching state control or involvement.
      • If such a system existed it could avail of essential health care without most people having to rely on a vagarious market, except as a luxury.
      • Example of the UK’s NHS: The National Health Service of the United Kingdom, remains the single largest health-care provider.
      • NHS employs nearly the entire health-care workforce.
      • NHS makes essential health care available to all practically free at the point of service.
    • Consequences of the absence of such system: The absence ensures is that the profit-driven private sector, the minor component, caters mainly to the affluent lot as largely a matter of deliberate choice rather than desperate compulsion.
      • Hopes of benefits of free-market belied: The Indian example, much like the United States’, bespeaks the failure of the idea that a free market will compel players to be more efficient.
      • The exploitation of the loops by the private players: Rather than increasing efficiency, the players have found it expedient to scrupulously exploit the prevailing cracks in the system and employ devious methods in order to maximise profits.

    Conclusion

    • Health-care providers, just like others, are moulded by their social surroundings. When necessary controls are loosened, the connatural vices are let loose; when the habitat is conducive to values, the right traits develop.
    • A system that starts off with health care as an overt tradable commodity it threatens the development of virtues in the system.
    • On the other hand, a system founded on the concept of equity cultivates a totally different culture of patient care.

     

     

  • Pulse Polio Programme

    The beginning of this year’s Pulse Polio Programme was inaugurated from the Rashtrapati Bhavan itself.  To prevent the virus from coming to India, the government has since March 2014 made the Oral Polio Vaccination (OPV) mandatory for those travelling between India and polio-affected countries.

    The Pulse Polio Programme

    • India launched the Pulse Polio immunisation programme in 1995, after a resolution for a global initiative of polio eradication was adopted by the World Health Assembly (WHA) in 1988.
    • Children in the age group of 0-5 years are administered polio drops during national and sub-national immunisation rounds (in high-risk areas) every year.

    India is polio-free

    • According to the Ministry of Health, the last polio case in the country was reported from Howrah district of West Bengal in January 2011.
    • The WHO on February 24, 2012, removed India from the list of countries with active endemic wild polio virus transmission.
    • Two years later, the South-East Asia Region of the WHO, of which India is a part, was certified as polio-free.

    Back2Basics

    What is Polio?

    • The WHO defines polio or poliomyelitis as a highly infectious viral disease, which mainly affects young children.
    • The virus is transmitted by person-to-person, spread mainly through the faecal-oral route or, less frequently, by a common vehicle (e.g. contaminated water or food) and multiplies in the intestine, from where it can invade the nervous system and can cause paralysis.
    • Initial symptoms of polio include fever, fatigue, headache, vomiting, stiffness in the neck, and pain in the limbs. In a small proportion of cases, the disease causes paralysis, which is often permanent.
    • There is no cure for polio, it can only be prevented by immunization.
  • Yada Yada Virus

    A new virus detected in Australian mosquitoes has been provisionally named the Yada Yada virus (YYV).

    Yada Yada

    • It is an alphavirus, a group of viruses that the researchers described as small, single-stranded positive-sense RNA viruses.
    • It includes species important to human and animal health, such as Chikungunya virus and Eastern equine encephalitis virus.
    • They are transmitted primarily by mosquitoes and (are) pathogenic in their vertebrate hosts.
    • Unlike some other alphaviruses, Yada Yada does not pose a threat to human beings.
  • [op-ed snap] Not ready for school

    Context

    The draft NEP (National Education Policy) document points out that close to five crore children currently in elementary school do not have foundational literacy and numeracy skills. 

    Severe learning crisis: The document cites several possible reasons for this crisis.

    • First reason:  Many children enter school before age six.
      • Lack of options: This is partly due to the lack of affordable and accessible options for pre-schooling.
      • Therefore, too many children go to Std. I with limited exposure to early childhood education.
      • Consequences for the poor: Children from poor families have a double disadvantage -lack of healthcare and nutrition and the absence of a supportive learning environment on the other.
    • Second reason: Lack of developmentally appropriate activities by age and phase.
      • The misplaced focus of ICDS: School readiness or early childhood development and education activities have not had a high priority in the ICDS system.
      • Acting as an extension of pre-school education: Private preschools that have increased access to preschool but are often designed to be a downward extension of schooling.
      • Thus, they bring in school-like features into the pre-school classroom, rather than developmentally appropriate activities by age and phase.

    Three clear trends in ASER-2019 data

    • First trend: Scope for expansion of Anganwadi network.
      • Expansion network: There is considerable scope for expanding Anganwadi outreach for three and four-year-old children.
      • All-India data from 2018 shows that slightly less than 30 per cent children at age three and 15.6 per cent of children at age four are not enrolled anywhere.
    • Second trend: Under 6 students in class I.
      • ASER 2018 data show that 27.6 per cent of all children in Std I are under six.
      • It is commonly assumed that children enter Standard I at age six and that they proceed year by year from Std I to Std VIII.
      • The Right to Education Act also refers to free and compulsory education for the age group six to 14.
      • However, the practice on the ground is quite different.
    • Third trend: There are important age implications for children’s learning.
      • Association with learning output: ASER-2019 indicate the higher learning output associated with age in the same class.
      • In Std. I, the ability to do cognitive activities among seven-eight-year olds can be 20 percentage points higher than their friends who are five years old but in the same class.
      • In terms of reading levels in Std. I, 37.1 per cent children who are under six can recognise letters whereas 76 per cent of those who are seven or eight can do the same.
      • Age distribution in Std. I vary considerably between government and private schools.
      • Private schools in many states have a relatively older age distribution.

    Way forward

    • Understanding the children: Understanding the challenges that children face when they are young is critical if we want to solve these problems early in children’s life.
    • Providing for developmentally appropriate skill: Instead of focusing on the pre-school years as the downward extension of school years there is a need for providing developmentally appropriate skill in these years.
    • Pedagogy: On the pedagogy side reworking of curriculum and activity is urgently needed for entire age band of four to eight.

     

  • National Policy for the treatment of 450 ‘Rare Diseases’

    The Union Ministry of Health and Family Welfare has published a national policy for the treatment of 450 ‘rare diseases’.

    About the Policy

    • The Centre first prepared such a policy in 2017 and appointed a committee in 2018 to review it.
    • It was created on the direction of the Delhi High Court to the Ministry of Health and Family Welfare.
    • This was in response to writ petitions for free treatment of such diseases, due to their “prohibitively” high cost of treatment.
    • Hence, a policy was deemed necessary to devise a “multipronged” and “multisectoral” approach to build India’s capacity for tackling such ailments.

    Why need such a policy?

    • As per the policy, out of all rare diseases in the world, less than five per cent have therapies available to treat them.
    • In India, roughly 450 rare diseases have been recorded from tertiary hospitals, of which the most common are Haemophilia, Thalassemia, Sickle-cell anemia, auto-immune diseases, Gaucher’s disease, and cystic fibrosis.

    Features of the policy

    • While the policy has not yet put down a detailed roadmap of how rare diseases will be treated.
    • It has mentioned some measures, which include creating a patient registry for rare diseases, arriving at a definition for rare diseases that is suited to India, taking legal and other measures to control the prices of their drugs etc.
    • It intends to kickstart a registry of rare diseases, which will be maintained by the Indian Council of Medical Research (ICMR).
    • Under the policy, there are three categories of rare diseases — requiring one-time curative treatment, diseases that require long-term treatment but where the cost is low, and those needing long-term treatments with high cost.
    • Some of the diseases in the first category include osteopetrosis and immune deficiency disorders, among others.
    • As per the policy, the assistance of Rs 15 lakh will be provided to patients suffering from rare diseases that require a one-time curative treatment under the Rashtriya Arogya Nidhi scheme.
    • The treatment will be limited to the beneficiaries of Pradhan Mantri Jan Arogya Yojana.

    What are rare diseases?

    • Broadly, a ‘rare disease’ is defined as a health condition of low prevalence that affects a small number of people when compared with other prevalent diseases in the general population. Many cases of rare diseases may be serious, chronic and life-threatening.
    • While a majority of rare diseases are believed to be genetic, many — such as some rare cancers and some autoimmune diseases — are not inherited, as per the NIH.
    • According to the policy, rare diseases include genetic diseases, rare cancers, infectious tropical diseases, and degenerative diseases.

    Definition

    • India does not have a definition of rare diseases because there is a lack of epidemiological data on its incidence and prevalence.
    • While there is no universally accepted definition of rare diseases, countries typically arrive at their own descriptions, taking into consideration disease prevalence, its severity and the existence of alternative therapeutic options.
    • In the US, for instance, a rare disease is defined as a condition that affects fewer than 200,000 people.
    • The same definition is used by the National Organisation for Rare Disorders (NORD) in India.